Voices of Motherhood: A Narrative Exploration of Raising Children with Down Syndrome

Abstract

This study aims to understand the parenting experiences of mothers of children with Down syndrome in Malaysia. Through in-depth interviews with five mothers, four themes emerged: financial difficulties, managing time, coping with emotional distress, and facing a lack of acceptance from the community. The findings of this study shed light on the significant sacrifices and efforts made by mothers of children with Down syndrome as they work to provide their children with the best possible care and support. Additionally, the importance of inclusive education for children with Down syndrome is highlighted, as it can play a crucial role in helping these children reach their full potential and be included in society. This study's findings are vital for professionals working with families of children with Down syndrome, as it provides valuable insight into the experiences and needs of these mothers. By understanding the specific challenges and triumphs these mothers face, professionals can better support and empower them as they raise their children and advocate for their needs.